Dec 15, 2009

How the Real "Lucy" helps those with Lupus, in the sky with diamonds

I am pretty sure many of us here remember John Lennon, and his song "Lucy in the Sky with Diamonds". Some may not realize how the song began and why John Lennon wrote it.

Years later, the real "Lucy" story is now banding so many of us together, through Julian Lennson & James Scott Cook, so we can once again find hope through those who dedicate something incredible for the fight against Lupus, and all of the other autoimmune illnesses that strike millions each year in our nation and around the world.

Here are some links about the story:

http://www.lupus.org/newsite/pages/the-story-of-LUCY.htm

http://www.nytimes.com/2009/09/29/arts/music/29lucy.html


http://flavorwire.com/56019/julian-lennon-talks-therevolution-the-new-single-and-lucy-vodden

This brought many emotions to me this morning. I had already known Lucy Vodden had passed away from Lupus, and her Mom is still living but also has Lupus.

I wanted to share what can happen with one little 4 year old boys drawings from school.

Happy Holidays, and My thoughts are this will lift you up as it did me.

You can also get the single from I-Tunes. I have already bought it.

Rhia

Dec 4, 2009

Awesome News New Lupus Medication finishing clincal trials

This will be very exciting news for all that suffer from this nightmare of a disease. There is another new medication coming out of Europe the UK named Lupuzor!!! It is "neck and neck" with Benlysta that is going onto the FDA and should be approved by hopefully early to mid 2010! They both began their clinical trials about the same time, and are now entering approval like here is is the FDA, and the UK also has their own entity that monitors and gives the okay for medications to be released to the general public.

I know of a couple of other ones that are now beginning, one I believe is in Dallas. I have thought about checking into it to see if I might qualify.

Here are some URL's where you can read the information on the clinical trials etc.

I am hoping, wishing, praying, cross my toes, fingers, and asking everyone else around me, family and friends, plus our church, my Mom's church have us all on prayer lists. When I say all, I have put everyone of us here in the group on those prayer lists, trying to have faith to know we that are in dire need of another phase of medication for Lupus, will be blessed this coming New Year! (In other words, I have given the group name, so that all in entirety that belong as members are on the list, for all we are suffering from)

Here are some URL's:


http://www.cnbc.com/id/34033582

http://www.istockanalyst.com/article/viewiStockNews/articleid/3649247

http://www.earthtimes.org/articles/show/positive-final-lupuzor-trial-results,1053828.shtml

http://www.cephalon.com/media/news-releases/article/cephalon-exercises-option-to-license-worldwide-rights-to-immupharma-product-lupuzor/



Blessings and Happy Holidays to all... I realize we are all struggling and juggling with the holidays, the economy, work, lack of work, job loss, the rising expense of everything, losing homes... etc... so I realize many of us, like myself do not always have the time to post... but all of you are in my heart and prayers daily...

A Huge hug to all, Rhia